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PORPHYRIA FACTS: NUTRITION - DIETING & WEIGHT LOSS
Is it o.k. to fast?
Fasting in porphyria patients must be avoided.
SOURCE:
Disorders of Porphyrins or Metals
Dwight Montgomery Bissell M.D.
# 203
pp1182-7
Cecil Textbook of Medicine
Volume 1 18th Edition
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Is caloric intake necessary for acute porphyria patients?
Nutrition Steps should be taken to ensure the patient has adequate nutrition.
In mild attacks this will be by the use of high calorie drinks or in severe cases by
the administration of intravenous dextrose, at least
400 grams of carbohydrate is required every 24 hours.
SOURCE:
The Porphyrias
Alana Adams RPH
Welsh Drug Information Center
Cardiff, Wales, U.K.
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Can dieting trigger attacks?
Acute attacks can be precipitated by dieting.
SOURCE:
The Acute Attack
Dr. Michael R. Moore
University of Queensland
Queensland, Australia
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Are crash diets harmful in porphyria?
Crash diets to loose weight rapidly should be avoided.
SOURCE:
Merck Manual
1996
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Can low calorie diets trigger porphyria?
A precipitating factor of acute porphyria can be reduced caloric intake.
SOURCE:
Dr. Michael R. Moore
Porphyria Research Unit
University of Queensland
Department of Medicine
Brisbane, Australia 1999
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Should dieting be avoided in acute porphyrias?
Dieting or fasting should be avoided.
SOURCE:
The Porphyrias
Alana Adams RPH
Welsh Drug Information Center
Cardiff, Wales, U.K.
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Why do many porphs get into trouble when dieting and trigger attacks?
People eliminate a lot of calories when they eliminate carbohydrates.
For example, you might eliminate not only the baked potato (200 calories) but
also two pats of butter (100 calories) on top of the potato--and this creates a
calorie deficit.
SOURCE:
Carbohydrate Confusion
Nancy Clark, MS, RD
Director of Nutrition Services
SportsMedicine Associates
Brookline MA. April 2002
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Do the types of carbohydrates make a difference in our blood sugar levels?
When we eat a baked potato, we get a more rapid spike in blood sugar than we
do even after eating pure table sugar.
SOURCE:
Weighs and Means
Controversy Surrounds Role
of Carbs in Weight-Loss Diets
Alexa Pozniak
Too Many Carbs?
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Does nutrition have anything to do with suddenly waking up in the middle of the
night?
Waking during the night often occurs do to a sudden drop in blood sugar.
Having a bedtime snack can often help with this.
SOURCE:
Vitamins and Minerals:
Healthy Diet & Safe Supplementation
Denise Mortimore
Element
2001
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Is it always necessary to have caloric intake?
Adequate calories are necessary and parenteral nutrition with carbohydrates
may be necessary.
Attacks may also require therapy for hypertension, pain and epileptic seizures.
Strict avoidance of all precipitating factors may not be necessary in the
asymptomatic phase however they may well trigger symptomology and a latent
patient may then become acute.
SOURCE:
Journal of Photodermatololy, Photoimmunology and Photomedicine
1998 Apr;
14(2):48-54
"Management of the acute porphyrias."
Kauppinen R, M.D.
Department of Medicine,
University Hospital
Helsinki, Finland.
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Dieting is permitted during times of remission, but may not go more than 10%
below the established BMR for the patient.
SOURCE:
Robert Johnson M.D.
Internal Medicine
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Is it necessary to consume water daily?
It is recommended to consume 6-8 (8oz) glasses of water along with other
beverages high in glucose per day. (Gatorade, rice water, Pedialite and
sport drinks are excellent sources of beverages high in glucose)
SOURCE:
Nutritional Guidelines For People With Porphyria
AIP Medical Guide
Sheryl Wilson, [HCP], MSN, RD
Does weight loss trigger acute porphyria?
Exacerbating factors include rapid weight loss,
SOURCE:
Prognosis of acute porphyria
Kauppinen R, Mustajoki P.
Medicine. 1992;71:1-13
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What is a desirable weight in acute porphyria?
A desirable weight is that of your BMR [basic metabolism rate] If you are dieting
you are NOT to go more than 10% below your BMR.
SOURCE:
Nutritional Guidelines For Porphyria
AIP Medical Guide
Sheryl Wilson, [HCP], MSN, RD
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Why is it necessary to avoid abrupt weight loss?
Abrupt weight loss is to be avoided by porphyria patients because it is a known
inducer.
SOURCE:
The Porphyrias
Pierach, Dr. Claus A.
Conn's Current Therapy
1998
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Can intake of alcohol lead to weight gain?
Alcohol can trigger porphyria and thus must be aoided at all times.
Alcohol has other harmful effects and can lead to weight gain.
SOURCE:
Nutritional Guidelines For People With Porphyria
AIP Medical Guide
Sheryl Wilson, [HCP], MSN, RD
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Should porphyria patients exercise regularly?
Is you are physically fit, your muscles readily store the sugar as glycogen with
the need of much less insulin.
Because of this, active people can handle high carb foods and lave less need
to worry about glycemic effect.
This is especially important for porphyria patients that are also diabetic.
SOURCE:
Robert Johnson M.D.
Internal Medicine
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What are the differences between sugars and starches?
The difference between sugars and starches comes in their nutritional value and
impact on your health.
Some sugars and starches are healthier than others.
For example, the sugar of orange juice is accompanied by vitamin C, folate and
potassium.
SOURCE:
Carbohydrate Confusion
Nancy Clark, MS, RD
Director of Nutrition Services
SportsMedicine Associates
Brookline MA. April 2002
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