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PORPHYRIA FACTS: NUTRITION SODIUM & HYPERTENSION
Most acute hepatic porphyria patients experience hypertension during acute
attacks and some will find that hypertension remains into remission.
For nutritionally controlling hypertension the following may be used in "cutting
back" and reducing dietary omduicers of hypertension.
Avoid:
Added salt
Alcoholic beverages
Caffeine containing foods
Cappucino
Chocolate
Coffee (with caffeine)
Soda pop (with caffeine)
Tea (wiff caffeine)
Foods containing high amount of bicarbonate sodium.
SOURCE:
Sheryl Wilson MNS RD
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What does anemia mean?
Anemia means having a low blood count.
Also an early iron deficiency can be detected by tests such as serum iron and
iron-binding capacity, and serum ferritin.
SOURCE:
Nutritional Guidelines For People With Porphyria
AIP Medical Guide
Sheryl Wilson, [HCP], MSN, RD
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It is important to remember if you have problems with edema
that iv solutions can be water based only or with saline.
If you have a history of edema (water retention) you should use the water based
glucose only.
SOURCE:
Robert Johnson M.D.
Internal Medicine
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How can one control edema during acute attacks?
Remember that during acute attacks often some of the glucose IV will contain
saline solution, while other may be only water.
Poprhyria patients who are troubled with edema need to restrict their saline
and should use the water based glucose infusions.
SOURCE:
Barbara Mattock RD
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Is salt safe to use in porphyria?
Salt intake need not be restricted unless it is important for controlling
hypertension.
SOURCE:
Diet and Nutrition in Porphyria
Dr. Karl E. Anderson
American Porphyria Foundation
Houston, Texas
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Do porphyria patients have to restrict their salt intake?
Salt intake need not be restricted unless it is important for controlling
hypertension.
The majority of porphyria patients do not have chronic hypertension.
SOURCE:
Nutritional Guidelines For Porphyria
AIP Medical Guide
Sheryl Wilson, [HCP], MSN, RD
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